It seems like something from a horror film – a girl who is unable to leave her home because blood can start spontaneously seeping from her eye, ears, beneath her tongue and from her scalp at any moment.
But for 17-year-old Marnie-Rae Harvey, this horrific scenario is her everyday life.
Her mother is terrified for her daughter and says she has to “shake her every morning to check she is alive”.
Baffled doctors have no idea what is causing the bleeding, which is steadily getting worse, and have dubbed her the “Mystery Girl” as they struggle to come up with a diagnosis.
Until they do, the teenager is forced to stay at home as the bleeding could start at any time, and must cope with the stigma of her condition which means she has lost most of her friends.
Her mother said: “Every morning I have to shake her to see if she is still alive. It’s absolutely devastating. It happens every single day. We’ve just gone through 12 days of solid bleeding from her tongue and scalp. She is sick four or five times a day, vomiting blood.”
Mystery: Her eyes started suddenly bleeding in July
Last July, the teenager woke up with blood seeping out of her eye. She was rushed to hospital by her terrified family, but doctors could do nothing.
Soon after, blood started seeping from her ears and from under her fingernails.
In the last couple of months the mysterious bleeding has spread to her scalp and under her tongue.
Cath said that her daughter had been coughing up blood and suffering from excruciating migraines for a couple of years before the bleeding started, meaning she was often to ill to go to school.
She said: “It feels like we are living in a horror movie.
“At first it was only her eye. She woke up in a pool of blood. She came downstairs with the blood pouring from her eye. We rushed her to A&E but they could do nothing for her.
“Then it started coming from inside her ears, big blood clots, and then from under her fingernails. Recently, she tipped her head upside down and blood started spurting out from her scalp.
“The strangest thing is that her eye can be pouring blood until her face is covered and then suddenly it stops and the whites of her eyes are clear.
Start: The condition started with her eyes and ears but has since spread to her scalp, tongue and fingernails
“The bleeding comes from the base of her tongue, a string of blood. She has to sit there with a cotton pad in her mouth to stop her swallowing blood.”
Cath, who works as a shop assistant in her home town of Stoke-on-Trent, said her other daughter Leigh, 25, and her dad have to stay with Marnie during the day as she cannot be left alone.
She added: “I wake up in the night with her vomiting blood and then I have to go to work. I can’t think of anything else, it’s a constant worry.”
One of the worst things for the family is the reaction of other people when they see her daughter.
She said: “There’s the scare factor. We go to A&E all the time in a panic at the symptoms but there is nothing they can do. Last time we were there everyone was taking pictures of her and saying how disgusting it was. I had to take her outside, where she passed out.”
Cath said she feels frustrated that doctors are unable to diagnose her daughter’s condition.
She said: “We’ve had it confirmed that Marnie does not have a brain tumour.
“Her blood tests come back clear and healthy, her iron levels are strong.
“She has no tumours, no blood diseases and no blood clotting disorders. Her blood clots well. Doctors have no answers, they are shocked. My local GP calls her the Mystery Girl. He knows what it isn’t but not what it is.”
An ultrasound scan showed her liver, kidneys, womb and ovaries and confirmed all organs are functioning perfectly, she added, and her eyes, ears, nose and throat are all fine.
She has also had MRI scans, CT scans and multiple blood tests, but the only problem anomaly doctors can identify is that she has a low immune system.
Marnie is waiting to see the gynaecologist to see if the condition, which gets worse around her periods, is linked to her uterus.
Hope: All Marnie wants to do is get a diagnosis and start living her life again
Marnie said the worst thing about her condition was being unable to leave the house or carry on with her life.
She said: “I’s weird, scary, really scary. I woke up the first time in a pool of blood. I walked downstairs and my eye was bleeding and the whole side of my face was covered in blood. My family were so shocked.
“I applied for a hairdressing course but I had to stop for fear of bleeding on the customers.
“I’ve lost most of my friends, they don’t want to see me. I’m always at home. My life is on hold, I can’t go to college.
“My eyes are the most shocking thing. I wish the doctors would just find what it is. No one has ever seen anything like it before.”
There have been a couple of reports of people bleeding from their eyes, including a man from Tennessee who was diagnosed with a condition called haemolacria, but none involve bleeding from other orifices.
The family are sharing their story in the hope someone somewhere has heard of the condition and could help them.
Cath said: “We know there will be silly comments, people calling her a vampire. But we hope someone, somewhere will have witnessed it and give us something, anything to help.
“We want to raise awareness, there must be someone else in the world with this.”
via : dailyrecord – Health